Our Lauren is very sick

1 Nov

I wake up groggy in a hospital room, the reality of the previous days events come crashing over me, beating me down and pulling into a state of despair like a crashing wave. My princess is sick and mommy and daddy can’t help. Any strength saved from last night so that I could hold it all together is gone, tears burn hot on my face.

I hold my sleepy angel and rock her back to sleep. She is so perfect, beautiful and smart… But her body isnt working properly, her motor skills are severely regressing. In the summer (5- 8) months she was maturing beautifully, hitting every milestone that she was meant to, sitting, jumping holding her little head high. Today she is unable to sit, her head wobbles, she has a strong preference for her right side and her legs are often stiff. In one short month and a half she has regressed.

The doctors think that her problem is Neurological. The first test that they do is a CT scan so that they can rule out masses (tumors), excess liquid and any apparent causes. On what I though was a positive note the test came back without anything major appearing that would explain Lauren’s condition.

So far we have seen six different doctors all of which have noted down every detail of my pregnancy right up until today, we’ve been asked about illnesses in our family and for any details that we may have missed.

Based on what information has been heard the Neurologist thinks that Lauren may have a recessive genetic disorder. This would happen if both Stephen and I happened to have the same error somewhere in our genetic code. It didn’t come up in our cases because you need two errors for the problem to manifest. (I’m sure that this was a dumbed down explanation). There’s so many diseases that it could be that I don’t have the strength to even think about it right now, not before they actually figure out which one it could be. Regardless this news is not comforting, most of these diseases are not treatable and in some cases other milestones can go.

I pray that there is another answer, some simple solution that has been staring us in the face that no one has seen yet.

We have only started the testing and seem to have a big road ahead of us before we will have a better idea of what is going on.

I ask you to pray with us for Lauren. At this moment there is nothing more important that we can do right now.

We will keep posting her progress through our blog.

A picture of our Princess smiling through it.



6 Responses to “Our Lauren is very sick”

  1. Kumar Perampalamoorthy November 1, 2011 at 6:58 PM #

    Amanda and Stephen, Our family is praying for Lauren’s recovery. We know and pray she will come out of this soon and well. Please let me know if there is anything you need. Faith and love will pull her and you both through this. Please let me know what we can do. We hope you guys find strength from everyone pulling for you guys.

  2. Stephanie Willcott November 1, 2011 at 8:24 PM #

    Oh Amanda,
    I’m so sorry about what is happening to Lauren..I can’t imagine what you must be going through. Montreal has wonderful specialists and I believe they will soon be able to help shed light on what is happening.

    Lauren is beautiful and these little people are so much tougher than we give them credit for, she knows her mommy abd daddy are near by, which is a big source of comfort for her. Please take care of yourselves and know that our thoughts and prayers are with you.
    Stephanie, Paul and Isabella XXX

  3. Marija Barisin November 2, 2011 at 8:19 PM #

    Dear Amanda,

    I just read your blog and tears are flowing down my cheeks as I write this. I am so sorry Loren is not as healthy as she used to be. I am not big on praying but I will pray for all the three of you for a simple diagnosis and even easier cure. As a fellow mom I can imagine how you feel right now! I know you are a strong and smart woman and you will be able to overcome whatever obstacle life throws at you but lets hope you won’t have to.

    Loads of love and thinking of you and your beautiful girl.


  4. Shannon November 2, 2011 at 11:23 PM #

    Amanda, Stephen and Lauren,
    My thoughts and every piece of positive energy is being focussed on the three of you. I am heartbroken that you have to go through all of the unknown. I am confident that the wonderful doctors will have positive answers for you soon. Many many hugs and lots and lots of love. Shannon

  5. natasa November 3, 2011 at 12:52 AM #

    to one very brave Mom and Dad!!!
    I’m very sorry of what is happening to a little princes and of what are both of you going through. I must say both of you are very brave and keep on believe. Your love is big enough to help Lauren get better , that,s the most important thing. You’ll see, everything will be just fine. Lauren and her family have our support in any way we can help.

  6. Dana November 3, 2011 at 3:29 AM #

    Amanda, I heard the news and I can only imagine what you are going through.
    Being a mom I empathy with you and I know how much you suffer and how millions of questions are going though your mind and one is coming over and over again- Why?
    I am praying that you have the strength and the peace to get through this.
    We are all behind you, wishing you all the best. Keep up the fight for your little Lauren!
    Lauren is lucky to have you as parents and you are blessed to have her in your lives.

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