Today is a happy one – we woke up to a beautiful winter day, a fresh dusting of snow filled the little circle leading up to our house, waiting for us to mark it with our tracks. After drinking our morning coffee and reading to Lauren, Stephen prepared her sled and packed her into her snowsuit. Soon after, we were off to explore our neighborhood. The streets were quiet and the sun joined us on our walk from its spot behind the clouds. Lauren loves sledding, she lies there bundled up watching me walk next to her while daddy pulls her ahead, she looks peaceful.
It’s amazing how a child can remind you how beautiful the world is. Lauren has this ability to bring me back to my childhood, aiding me to see how the smell and sights of winter can be wonderful. More than ever I’ve been noticing the beauty of the world around me, I often find myself looking out our windows at the trees and birds in our backyard. The shimmering sun off the icy snow can be really beautiful. Sometimes it’s this beauty that brings me sadness, I’m sad that Lauren’s time on this world is limited and that she wont get the chance to really experience the world like another child her age.
This past week has been a mostly positive one for our family. Lauren’s recent increase in Baclofen (a muscle relaxant) seems to have helped in making her more comfortable. She still has moments where she is clearly in pain but thankfully they are short-lived. I’ve been noticing that she is a lot gassier this week than usual, I’ve had to make sure that I vent her stomach after every meal to help her. Poor baby! Have you ever had bad cramps from eating the wrong thing (that may have seemed so right at the time 😉 ) imagine living with those cramps every day and not being able to properly work it out on your own.
This week I spent a lot of time dancing with Lauren around the house, our favourite show is the Much Music Countdown. Her and I love to spin around the family room to all of the new videos. Lauren makes the cutest faces when she dance, and sometimes she even lets out a coo letting me know that she is happy.
On Wednesday the cutest thing happened, Lauren Laughed. I was dancing around the family room with her and Stephen was washing dishes in the kitchen. It was such a fun moment that Lauren and I wanted to include daddy, so we danced right up to him at the sink, upon which he let out a happy “Peek a boo”. Lauren loved this and let out s very small giggle – of course this led to us repeating it over and over to see if we could keep it going. She only laughed once or twice more, but it was obvious that she was thrilled.
Thursday was dinner night at Grandma and Grandpa’s house. Lauren had a really fun time watching TV in Grandma’s arms, having discussions at length with Grandpa, and getting many kisses from her big brother Oscar. Oscar is our dog, he has been staying with my parents since Lauren’s diagnosis. He’s a good boy around family but can seem a bit aggressive with strangers, and considering the fact that he weighs 120lb we decided that it might not be the best to have him at home when lots of people had been stopping by to check in on Lauren. Additionally the weather has been so cold, and with Lauren hating her stroller I couldn’t give him all the walks that he needs. I’m looking forward to bringing him home when the weather gets nicer, in the meantime he’s in very good hands.
On Friday we all went to the Mackay Rehab Centre to get Lauren fitted for an adaptive stroller (i.e. child wheelchair). It was a great experience, we felt like we were in good hands and are really excited to get the new equipment for Lauren. I even cried a little when they mentioned that they were going to order us a device that would allow us to snap the chair section out onto a roller in the house. The device has a lift so Lauren can join us comfortably at the table! This also means that I will have more freedom as I can move her around the house with me. This is HUGE! Leaving Lauren on her own for even a minute or so at a time scares me, she has had a few instances where she has started to choke on her saliva so leaving her alone for any space of time can be a worry.