The Memory Jar

20 Feb

This week was difficult to start, Lauren was feeling more pain than in days previous and was unable to enjoy the things that she likes best – being held and dancing around with mommy.

Adding to the stress of Lauren’s pain issues we received a tasteless letter from the Quebec SAAQ on Monday denying our request for a handicap parking permit. Instead of advising us that they would need more information they wrote, “We are unable to process your request. At this point in time, the child’s limitations due to his (her) young age may be mistaken for inabilities.” I couldn’t believe that someone reviewing our file could write something so insensitive, I mean did they really think that we applied for a handicap permit just because our one year old can’t walk! After a day or so of being angry I just decided to focus on building a better case and send them a note from our doctor accompanied by a (highly edited) note from myself requesting that they take a second look.

The good news is that the week did improve as it went on. Valentines day was nice and relaxing, Lauren gave us many kisses and Stephen surprised me with beautiful roses and one of the most touching cards, we ordered in from an italian restaurant and enjoyed our time together in the family room.

On Wednesday, we received a very exciting package in the mail, Lauren’s lavender bracelets! We ordered these bracelets to help us to raise money for Lauren’s care (stuff that insurance can’t cover) and to raise awareness about Lauren and her journey with Krabbe disease. On a side note, If you would like to get your hands on one of Lauren’s ultra fashionable bracelets you can click on How to Help in the menu or just click here.

Thursday, we headed to the Montreal children’s hospital to see Lauren’s Neurologist. The appointment went well and we were able to get Lauren on a new medication – Indocin, an anti-inflammatory. From my understanding this medication can help lessen some of Lauren’s symptoms by alleviating the inflammation in her brain. It’s a little too early to tell if the medication is helping, Lauren does seem a bit more alert but she still screams when we try to move her. We will be going back to the hospital on Tuesday for an EEG so we will be monitoring her pain levels until then, I’m hoping that we wont have to increase her pain killers just yet.

On Friday Lauren’s Nonna arrived from Belleville, and with her came goodies for Lauren! Jenn Munro (check out her blog post about Lauren here) had captured some beautiful images of Lauren in January, and with the help of her fans raised money for some gorgeous canvases and a donation. Along with the canvases came a cute blanket by Dezignz by Liz and decorative pom poms from Pom Tree. She even inspired a musician named Emelie Mover to raise money and dedicate a show to Lauren, how very cool is that!

At this point you may be wondering about the title of this blog, well I figured why not save one of my favourite moments of the week for last!

On Valentines day Stephen and I started a memory jar, it’s an idea that I came across on Pinterest and fell in love. A memory jar is basically a place where you store memories that you jot down before forgetting. The fun part about it is that it doesn’t take much time, and can be added to at any time using any piece of available paper. So many fun things happen in our lives and sometimes we forget, with the memory jar it’s easy to find a scrap piece of paper to record those fun memories. Another great feature is that unlike a journal or diary anyone can take part in adding memories to the jar, family and friends alike are welcome! The memory jar has also been a great tool for helping me to focus on the good things that are happening around us at a time when it can be so easy to drown in the bad.

Our Memory Jar - Surrounded by Lauren's Lavender Bracelets

Lauren and Cookie Monster - This is as close as we got to a smile this week

Lauren enjoying her new Blanket

Lauren sporting a lavender lifewithlol bracelet 🙂

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12 Responses to “The Memory Jar”

  1. Emily February 20, 2012 at 11:51 AM #

    Hi Amanda, I was just wondering, would it be possible to buy a bracelet by direct debit, since I don’t have a credit card right now?

    • lifewithlol February 20, 2012 at 3:18 PM #

      Not sure how direct debit works, but you can us a email money transfer or mail a cheque if you like. We’d be happy to send you a bracelet. Let us know at lifewithlol@gmail.com. Thanks!

  2. Stephen February 20, 2012 at 12:28 PM #

    Amanda, perhaps a e-mail to ctv montreals “on your side” could help with the parking pass issue.

    • ann morfitt February 20, 2012 at 2:39 PM #

      Great idea, Stephen! Would you like me to send one off as well?

    • lifewithlol February 20, 2012 at 3:17 PM #

      Not a bad idea! But I’m going to give it a second shot first and see how it goes. We get Lauren’s special stroller in a month so I still have a little bit of time.

  3. ann morfitt February 20, 2012 at 3:29 PM #

    Dear Amanda and Stephen,

    Both of you are raising a daughter who exemplifies your courage, hope and love. The three of you have changed me eternally. I had thought I understood what living in the moment meant but you have brought me to the understanding that ‘now’ is where the future meets the past, right here. Thus, the common expression that I had always thought I understood, the here and now, is gaining clarity from your unselfishness of sharing your dichotomous journey ‘beautiful-painful’. Your family personifies the simplicity of it, letting go all that is not real and zooming in to what truly matters. The Lougheed family’s memory jar certainly epitomizes this grasp and actualization. I only hope the jar brims over as do your three hearts with love, laughter, and deep spiritual faith.

    How do we order the bracelet?

    I hope the indocin gives you relief, Lauren, and may God take your pain, please? Ask and you shall receive, we have to insert the question mark. We did, Lord!

    Love, Ann, Aunt Nellie, Willie, Robbie and Pat xox

  4. sylvia February 20, 2012 at 5:59 PM #

    beautiful lauren looking so big and loved. you guys are inspirational. we r in canada in june so hopefully we hook up. how do we get the bracelets?

  5. Emily February 20, 2012 at 8:53 PM #

    Hmm…….not sure how the money transfer thing works, and I don’t have cheques. I’ll figure it out somehow, though.

  6. Stephine February 20, 2012 at 10:37 PM #

    I donated ❤ Yet another beautiful & heartbreaking post.

Trackbacks/Pingbacks

  1. Spring Has Sprung | lifewithrottendog - April 20, 2012

    […] check out Lauren’s blog, her mom is selling bracelets to support her https://lifewithlol.wordpress.com/2012/02/20/the-memory-jar/ I got my bracelet the other day. I was so happy to show my support to this […]

  2. I’ll love you forever « lifewithlol - January 9, 2013

    […] in the past year. So many memories were made, each one an incredible gift. It reminded me of the Memory Jar that I had started last February, I neglected it for a few months when times with Lauren seemed to […]

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