A Very Happy 14 Month Birthday!

9 Mar

As of Yesterday Lauren has been in our lives (formally anyway) for fourteen months and although there have been many ups and even more downs, she didn’t hold back giving us reasons to celebrate.

The past few weeks have been difficult, I haven’t been able to hold Lauren without her crying. It has been a big adjustment knowing that I can calm her by putting her down rather than holding her close. My whole being ached to hold her, this has been the most difficult time for me since this terrible disease has taken over.

Yesterday Lauren gave me a gift, she gave me strength.

The morning started with Lauren’s first visit to an Osteopath. Stephen had made the appointment on a recommendation that he got when he was looking around for a baby massage therapist. Going into the appointment we really didn’t know what to expect. I fully expected that Lauren would scream her way through it and that we would just end up going home early, thankfully I was wrong! Lauren loved her visit, every time she would start to whine because of a new movement or change of position it would soon transform into a coo. By the end of the visit we were just happy that Lauren had enjoyed her time.

About half an hour after arriving home Lauren’s legs were so flexible and relaxed, it was amazing! Her legs weren’t in the least bit stiff, and she hadn’t even had her first dose of muscle relaxant yet. As the day went on she seemed very comfortable, so comfortable that she inspired Mommy to take a cozy nap with her.

When we woke up daddy was bringing in her new car seat that we had ordered. I looked at Lauren and she looked at me, we were both excited to try it out. Then I dared to do something scary, I picked her up! It was then that a miracle happened, she didn’t cry or scream, her arms didn’t flail forward or her body stiffen up, she was relaxed and staring at me. I cry tears as I write just thinking about it and how happy she made me.

Somehow I managed to put her in her new car seat (after about at least a half hour of holding time), she looked very cozy and comfortable, it called for another picture. I asked Steve to help me get her attention so that she would open her eyes wider, upon seeing her daddy she one upped that and offered a very cute and brief smile.

Thank you everyone for your continued thoughts and prayers, they are working! During such a difficult time, at a point when our strength was starting to falter we were granted such a wonderful day.

A happy mommy with her baby. Wouldn't trade this moment for any amount of money, thank you baby Lauren!

Lauren Loving her new car seat, and saying thank you to everyone for helping mommy and daddy to buy it!

Baby and daddy cozying up together

Lauren looking cute


18 Responses to “A Very Happy 14 Month Birthday!”

  1. Anne Myerscough March 9, 2012 at 10:04 PM #

    Just never give up. I know how hard it is in the beginning. Just know that we just never know. My Chancey lived to be 91/2 years old.. Yes the simply things like just a smile will warm your hearts. It did mine. She is absolutely beautiful.

    Anne Myerscough (Chancey’s Momma)

    • lifewithlol March 10, 2012 at 6:23 PM #

      Thank you Anne. It is so hard but we are hanging in there. Thank you for sharing Chance with us, I checked out your caring bridge page last night. I think that writing your entries from his point of view is incredibly strong.

  2. Becky Colp March 9, 2012 at 10:13 PM #

    Yayyyyyy!!!! She sure did smile!!! Hope you have more of these days!!! Love you peanut!!!

  3. Tara Asling-Martin March 9, 2012 at 10:17 PM #

    Happy 14mth Lauren, you look beautiful as always. Hugs and kisses 🙂

    Tara and Baby Payton xo

  4. Lillian Mansour March 9, 2012 at 10:19 PM #

    Hello Amanda

    Lauren looks so happy in her new car seat sending all my prayers and love to you and Stephen. God bless xx

  5. Stephine March 9, 2012 at 10:39 PM #

    Yay, what a wonderful post. I hope the massages continue to work and maybe even you can learn them too. I wear my bracelet for her every day, along with my angel mommy bracelet for my Silas!

  6. Amanda Earles March 9, 2012 at 11:30 PM #

    Very happy that you were blessed with a great day with Lauren. I keep you all in my prayers daily and wear my bracelets every day for little Lauren. I have shared her story with so many because of people asking me what the lavender bracelets are for. Lot’s of love and prayers your way.

  7. Ken Roberts March 10, 2012 at 4:58 AM #

    So happy to read this latest blog. Physio is so important for our children, here in the UK the doctors do not accept this at all. We try to educate them. We know it helps. Love the new pictures of Lauren.

    Ken. XX

  8. melaniewand March 10, 2012 at 6:55 AM #

    Tears to my eyes too Amanda. So glad you both got that ‘holding’ time with each other. Keep on smiling – Lauren seems to be doing a great job of it from the photos 🙂

  9. ann morfitt March 10, 2012 at 7:21 AM #

    It must have been wonderful for you to hold Lauren again without her feeling pain. So happy to hear that her response to the massage was successful. The car seat is a lovely pattern and she looks very comfortable in it. Lauren’s adorable smile says it all.

    I know yours is an unusual and extremely difficult path but you are all weathering these adaptations with sanity and love. The speed with which you are forced to respond is a challenge but you consistently step up to the plate and I’d have to say, you got it out of the park with the force of three!

    God bless Lauren on her 14th

    Love, Ann

  10. Kumar Perampalamoorthy March 10, 2012 at 8:14 AM #

    Wow, what a touching story and sounds like
    an amazing day for the whole family.

  11. Sarah Dudko March 10, 2012 at 12:55 PM #

    Hey Lauren, so glad you and Mummy & Daddy have had a lovely day. Happy 14month Birthday beautiful girl. Hey, I love your T-Shirt, reminds me of my big girl! xxx

    • lifewithlol March 10, 2012 at 6:28 PM #

      Awwww, Sarah I love that shirt even more now! Sending love to you and your sweet Angel Daisy!

  12. rana March 10, 2012 at 8:24 PM #

    Amanda, You inspire us —you and your family–your resoluteness, strength and beautiful words. I am far away, but I think of all of you. Respect and strength!

  13. Jeff Rose March 12, 2012 at 9:41 AM #

    Amanda, Stephen and Lauren,
    I am in awe of your strength and applaud your will and determination.
    Lauren you continue to inspire us all. Happy 14 months sweetheart!

  14. Stephanie Reid March 14, 2012 at 5:51 PM #

    How has she been doing lately with being held?

  15. Mony Mandel March 16, 2012 at 12:03 AM #

    What a smile-inducing post…so happy to read about these bright moments and praying for day after day of happy times for your family.

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