This is a very special post, it involves two of the most beautiful and wonderful girls one can ever meet – Naéva and Lauren.
Naéva is beautiful, she is sweet and delicate and shares many similarities with Lauren. The two girls are so stunning and angelic that you can feel their beauty deep in your heart.
These ladies were fast to be friends from the very start, they have the same great spirit, fashion sense, gorgeous big eyes framed with the most stunning lashes and the sweetest noses and lips, they are soul mates.
Sadly they both suffer from the same horrible disease, Krabbe leukodystrophy.
In early December my mom called to tell me that she had seen a mother post on Lauren’s Facebook page whose daughter was like Lauren and that they lived nearby! With the disease being as rare as it is, we couldn’t believe that we had found another living child so close by.
Soon after Naéva’s mother and myself were exchanging messages. As fate would have it a week later we would find ourselves crossing paths at the same hospital (a complete coincidence!).
Come January we just had to have the girls meet for a proper play date. We went to visit at Naéva’s home, to say that it was an amazing experience would be an understatement. The visit was so comfortable that it was like meeting with old friends, the visit brought joy and relief to have someone to talk to about what we have been through. It also brought sadness, Naéva like Lauren is so special and I have such a heavy heart that her family has to face the same destiny.
This past Saturday we were lucky enough to have the girls meet again for Lauren’s Birthday party! (more pictures of that to follow in another post!)
We are so fortunate to know Naéva and her family and look forward to sharing many more moments with our daughters together.
You can check out Naéva’s website here: http://www.naeva.ca/