Soul Sisters

20 Jan


This is a very special post,  it involves two of the most beautiful and wonderful girls one can ever meet – Naéva and Lauren.

Naéva is beautiful, she is sweet and delicate and shares many similarities with Lauren. The two girls are so stunning and angelic that you can feel their beauty deep in your heart.

These ladies were fast to be friends from the very start, they have the same great spirit, fashion sense, gorgeous big eyes framed with the most stunning lashes and the sweetest noses and lips, they are soul mates.

Sadly they both suffer from the same horrible disease, Krabbe leukodystrophy.

In early December my mom called to tell me that she had seen a mother post on Lauren’s Facebook page whose daughter was like Lauren and that they lived nearby! With the disease being as rare as it is, we couldn’t believe that we had found another living child so close by.

Soon after Naéva’s mother and myself were exchanging messages. As fate would have it a week later we would find ourselves crossing paths at the same hospital (a complete coincidence!).

Come January we just had to have the girls meet for a proper play date. We went to visit at Naéva’s home, to say that it was an amazing experience would be an understatement. The visit was so comfortable that it was like meeting with old friends, the visit brought joy and relief to have someone to talk to about what we have been through. It also brought sadness, Naéva like Lauren is so special and I have such a heavy heart that her family has to face the same destiny.

This past Saturday we were lucky enough to have the girls meet again for Lauren’s Birthday party! (more pictures of that to follow in another post!)

We are so fortunate to know Naéva and her family and look forward to sharing many more moments with our daughters together.

You can check out Naéva’s website here:

Lauren watching over her new best friend

Lauren watching over her new best friend

Slumber Party! :) Two princesses take an afternoon nap together

Slumber Party! 🙂 Two princesses take an afternoon nap together

Because their toes are too cute not to share!

photo 2

Group Picture! Josée, Yannick and Naéva with Lauren, Stephen and Amanda


10 Responses to “Soul Sisters”

  1. c1u5 January 21, 2013 at 6:01 AM #

    Naeva and Lauren are indeed soul sisters. The pics tell all, how they enjoy each other. What can beat having a friend to share your birthday party.
    Ann xo

  2. Natalie January 21, 2013 at 8:39 AM #

    How special that your families are able to share the girls’ experiences on a regular basis. Naeva and Lauren look to be fast friends already. Much love and peace to all of you.

  3. Josée January 21, 2013 at 8:51 AM #

    Thank for this post about our Krabbe princess! We are so proud of Lauren and Naéva!!!! It’s like you guys are a part of our family now xxxxx

  4. elizabeth mansour January 21, 2013 at 9:42 AM #

    Thanks Phyllis for sharing this, how adorable they both are. Love ya Lillian xx

    Date: Mon, 21 Jan 2013 04:47:07 +0000 To:

  5. Emma January 21, 2013 at 11:17 AM #

    This just makes me happy. I’m so glad Lauren has a great friend living close by! Even though it always breaks my heart to hear about another child who has to suffer. Lots of love from Emma and Elias!

  6. Micheline Montreuil January 21, 2013 at 1:49 PM #

    I loved all the beautiful pictures you so graciously shared with all of us who have been following Lauren’s journey this past year. I am wondering if I could still purchase some of the lovely purple bracelets you had up on FB or your webpage a while ago. If you could send me an e-mail and let me know how I go about buying some I would greatly appreciate it. Take care. God Bless. My e-mail address is: Thanks.

    Micheline Montreuil

    On Sun, Jan 20, 2013 at 11:46 PM, lifewithlol

    • stephen2012 January 28, 2013 at 6:57 PM #

      Hi Micheline,

      You can click the ‘How to Help’ link at the top of this page. That page has details of the Lavender bracelets.

      Amand & Stephen

  7. Debbie Strongilos January 21, 2013 at 9:23 PM #

    Thank you for sharing these pictures with us of these precious, beautiful girls.

  8. Suzie January 23, 2013 at 2:08 PM #

    Absolutely gorgeous little girls and so fortunate to have such amazing parents.

  9. Kristen D January 26, 2013 at 10:44 AM #

    This is incredible and really grabs my heart. It is amazing that you found people so close to share your experience. And amazing that you can share events and visits…. I think of Lauren often xo. Happy Belated Birthday!

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