A belated posting of a touching moment

29 May

I’m always touched by the thoughtfulness of children when it comes to Lauren. I’ve had several stories shared with me from proud parents and friends whose children were moved by Lauren’s story and have taken on roles to help.

It’s even happened more than once where a couple of different friends have told me about some children who had heard about Lauren and were so affected by her story that they started a Lemonade stand to raise money for our little girl.

Another cool story – A girl in Belleville (Steve’s hometown) gave a speech to her class about Lauren’s and her journey with Krabbe disease, and even gave out lifewithlol bracelets at the end to help build awareness.

Others have done artwork dedicated to Lauren.

These stories always bring me such joy.

Back in March Lauren had received a very touching gift that I want to make mention of today. My friend’s daughter Samantha is a Girl Guide and had mentioned Lauren’s story to her group – the 1st Saint Lazare Girl Guides. The girls had been so touched by Lauren that they worked together on a special project for Lauren’s 2nd Birthday.

My friend and I had tried to plan a way for Lauren to meet a few of the girls but between colds and holiday plans it didn’t seem to work out. Finally, after a few months of trying to coordinate a date, Samantha came by to present Lauren with her very special birthday card and beautiful basket full of presents for Lauren.

Sam giving Lauren her birthday basket

Sam giving Lauren her birthday basket

Samantha is a very well spoken and sweet girl, and I’m sure that she is a great representation of the group of girls that she was presenting for. She thoughtfully explained each gift as I opened up the basket to go through it.


Samantha showing off the back of Lauren’s Birthday Card

The first thing that we looked at together was a beautiful card that the girls had crafted for Lauren. It was so perfectly made in Lauren’s favourite colours, composed of beautiful rectangles that each girl had decorated as a unique piece of art. The card was so beautiful and special with it’s quilt like characteristics.

Below is a closer look at the card. (by the way, this card is still proudly displayed in Lauren’s bedroom on a shelf for all visitors to see!)

photo 2

The front of Lauren’s beautiful birthday card

The Back of Lauren's beautiful birthday card.

The Back of Lauren’s beautiful birthday card.

The next thing that we pulled out were these beautiful candy hair clips. These are so cute in person, and they look delicious, Samantha’s mom did ensure me that they were well lacquered so that they would wear well (i.e. don’t eat them :)) . She also had an awesome idea, which was that we could maybe share some of the clips with Lauren’s other friends. So this summer we will be bringing them with us to the Hunters Hope Symposium where Lauren will be spending a few days with her friends.

Beautiful Candy Hair clips

Beautiful Candy Hair clips

A picture of Lauren from this morning (May 29) wearing one of her pretty hair clips

A picture of Lauren from this morning (May 29) wearing one of her pretty hair clips

Samantha explained that some of the girls missed out on making some of the crafts and in place had included some bracelets that the had made for Lauren in place. Lauren is very excited about wearing some of these when the weather warms up and she gets to wear T-shirts again.

Bracelets for Lauren

Bracelets for Lauren

The next thing is VERY cool. The girls made Lauren some Worry Dolls, with a note that reads as follows.

Worry Doll Legend
There is a legend amongst the highland Indian villages of Guatemala: If you have a problem then share it with a worry doll. Before going to bed, tell one worry to each doll, then place it beneath your pillow whilst you sleep, the dolls will take your worries away!

Well as a mommy of a sick child you can imagine how appreciated a worry doll is! This is a gift that I will be sharing with Lauren as we will both sleep with some of the dolls under our pillows!

You can see Lauren is actually wearing a Worry Doll as a ring in the picture below

Lauren wearing one of her worry dolls as a ring :)

Lauren wearing one of her worry dolls as a ring 🙂

And here a picture of all of our worry dolls together, aren’t they so so cute!

A look at all of Lauren's worry dolls

A look at all of Lauren’s worry dolls

This Origami bird was also included in our basket

A special bird

A special bird

We had a wonderful visit and time looking through all of the special gifts that the girls had prepared for Lauren.

So from Lauren, Lauren’s Mommy Amanda, and her Daddy Stephen – Thank you to the 1st Saint Lazare Girl Guides for thinking and caring so much about Lauren that you took the time to make her such beautiful gifts. xoxo

Lauren enjoying her moment with Samantha

Lauren enjoying her moment with Samantha


6 Responses to “A belated posting of a touching moment”

  1. Becky May 29, 2013 at 3:03 PM #

    Very sweet ..thoughtful kids…xoxo

  2. mariahpizzi@gmail.com May 29, 2013 at 3:25 PM #

    Unbelievable what children come up with. So beautiful so caring so creative and compassionate on the part of those girl guides. They are special because they have touched Lauren’s heart in so many ways. May people like this continue these special deeds. They are worth an applaud and recognotion. Hugs n kisses to Lauren.

  3. Sheena Stewart May 29, 2013 at 3:33 PM #

    Hi Amanda

    I’m not sure if you would remember me or not as I had more interaction with Stephen but i was in sales at Future Toronto. I read every post and my heart is with you as a Mom myself. I have told my son Bronson about Lauren and shared her pics. Bronson says a prayer for her every night. he was taught in school to say prayers but he added Lauren himself. He has wanted to set up a charity for a few years now and we were never quite sure how to do it or what for. My husband is a juvenile diabetic but still did not really sit with us. I am not sure why it has not come to me before this and I truly hope I do not offend you but I was wondering if Bronson might be able to set up something that we could direct to you and Stephen for Lauren’s care etc. I am not really sure how to do this but i am thinking you might be able to direct us. He is six years old and such a heartfelt little boy he would go door to door and ask everyone we know as well as set something up at his school. I guess i just want to know if this would be okay with you. With your direction I will get it going and send you the money as it gets going. Let me know your thoughts. I have one little boy who would be a great ambassador for Krabbs disease as well as Lauren.


    • lifewithlol June 8, 2013 at 10:11 PM #

      Hi Sheena!
      I know that Stephen got in touch with you, I still wanted to reply and let you now how touching this message was. You’re son sounds like a very wonderful, thoughtful and very mature six year old!

      Sending you and Bronson many hugs!
      Amanda and Lauren

  4. ann morfittt May 29, 2013 at 9:45 PM #

    Samantha is certainly a warm ambassador for the 1st St. Lazare Girl Guides. How thoughtful of the girl guides to deliver a basket to beautiful Lauren filled with such creative gifts. I was mesmerized by the worry dolls. Sometimes putting things into words alone, even worries, can help compartmentalize, and allow a release of energy to deal with the immediate moment. The origami bird is so unique and the hairclips are a real treat. I’m sure the other children will look lovely with these in their hair, as well. Children bringing joy to children, how hugely empathetic! Lauren is so loved! What a detailed, personalized card!

    Ann xix

  5. rana May 30, 2013 at 7:17 AM #

    wonderful postings…inspiring…..more strength and my very best to all of you……. rana

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