Amanda and Stephen met at Bishops University. Amanda was in her final year and Stephen was just completing his first year when they starting dating. After graduating Amanda moved back to Montreal and began working while Stephen remained at Bishops to complete his degree. They continued dating long-distance for two years until Stephen graduated and moved to Montreal to be with Amanda.
Shortly after moving to Montreal Stephen proposed to Amanda and they got married a year later, bought a house and began their life together.
In 2010, Amanda and Stephen found out they were going to have a baby girl! They took great joy in preparing for the coming of their little princess and in January 2011 Lauren Olivia Loughheed was born. She was beautiful and brought so much joy to the whole family.
Lauren developed normally and was meeting and even exceeding developmental milestones for the first 9 months of her life. She was smiling, laughing, and playing in her jumparoo. Lauren then began to slow down, no longer sat up on her own and started to become irritable.
In November 2011, after doing an MRI and a host of other neurological and metabolic tests, Lauren was diagnosed with Krabbe Leukodystrophy.
Since the diagnosis, Amanda and Stephen have been re-structuring their lives to provide care for Lauren.
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January 2016 update:
Our dear Lauren lost her battle to Krabbe Disease on April 13th 2015. I have had so much trouble updating this blog since.
We miss her so deeply. She was 4 years and 3 months old when she passed. That is three years more than our initial diagnosis – Three years of extra kisses, snuggles and hugs but at the same time not nearly enough.
We lived for every minute and every breath. She left us the legacy of learning to live for the moment. Every day and every minute is a gift, a lesson that we will always appreciate.
On July 2nd 2015, we were blessed with the birth of Lauren’s sweet little sister Zoe. Like her sister she is very cute and sweet. We love her so very much, and we are sure that her big sister is smiling down upon her.