How to help – Comment aider Bracelets

Lauren loved to travel and experience a lot of fun activities, we took her all over to experience many different and fun activities – we truly feel that these experiences lifted her spirit and improved her quality of life. Her memorial fund will help support activities for families that will make their children’s lives more enjoyable, whether that be for a day at a zoo or to cover the cost for a visit to or from a family member. If you would like to support this effort we would love to send you a bracelet.

So far this year we have been able to:

  • Cover the cost of a face painter for a little girls birthday party.
  • Cover the cost of a full Princess Makeover for another princess at a party.
  • Cover shipping costs to send medical supplies to families who needed them.
  • Help to cover partial travel expenses to the Hunters Hope Symposium.

You can donate to the fund and receive a bracelet through the following link.


Please note your donation is considered a personal gift, and that at this time we are unable to provide tax receipts. Money goes directly to help families.

Donate to Judson’s Legacy

Judson’s Legacy is a Non Profit charity in the United States who promote Krabbe awareness, and are committed to funding research for a cure.

“Judson’s Legacy is committed to financially supporting the Hunter James Kelly Research Institute (HJKRI), a collaboration between the University of Buffalo and the Hunter’s Hope Foundation. HJKRI provides a multidisciplinary approach, clinical and basic science, to specifically research Krabbe and other leukodystrophy diseases. Judson’s Legacy has already given over $100,000 to HJKRI while also investing in other Krabbe disease-related research projects across the nation. – See more at: Bracelets

Lauren aimait voyager et de découvrir de nombreuses activités amusantes, nous lui avons tout de découvrir de nombreuses activités différentes et amusantes – nous nous sentons vraiment que ces expériences levées son esprit et d’améliorer sa qualité de vie. Son fonds commémoratif aidera activités de soutien aux familles qui rendront la vie de leurs enfants plus agréable, que ce soit pour une journée à un zoo ou pour couvrir le coût d’une visite ou d’un membre de la famille. Si vous souhaitez soutenir cet effort, nous serions ravis de vous envoyer un bracelet

Jusqu’à présent cette année, nous avons été en mesure de:

  • Couvrir le coût d’un peintre de visage pour une petite fête d’anniversaire de filles.
  • Couvrir le coût d’un plein princesse Makeover pour une autre princesse lors d’une fête.
  • Couvrir les frais de port pour envoyer des fournitures médicales aux familles qui en ont besoin.
  • Aide pour couvrir les frais de voyage partielles au Symposium espoir chasseurs.
  • Vous pouvez faire un don à la caisse et de recevoir un bracelet via le lien ci-dessous.


S’il vous plaît noter que votre don est considéré comme un cadeau personnel, et qu’à ce moment nous sommes incapables de fournir des reçus d’impôt. L’argent va directement à aider les familles.

Faire un don à l’héritage de Judson

L’héritage de Judson est un organisme de bienfaisance à but non lucratif aux États-Unis qui font la promotion de sensibilisation Krabbe, et se sont engagés à financer la recherche pour trouver un remède.
“L’héritage de Judson est engagé à soutenir financièrement l’Institut Hunter James Kelly recherche (HJKRI), une collaboration entre l’Université de Buffalo et de la Fondation de la Hunter Hope. HJKRI fournit une approche multidisciplinaire, la science clinique et fondamentale, à la recherche spécifiquement Krabbe et d’autres maladies de la leucodystrophie . l’héritage de Judson a déjà donné plus de 100.000 $ à HJKRI tout en investissant dans d’autres projets de recherche liés à la maladie de Krabbe à travers la nation – Voir plus:.


9 Responses to “How to help – Comment aider”

  1. Katelyn Shilling March 17, 2012 at 6:10 PM #

    Received my bracelet today! 🙂 I was glad I could help in some sort of way. I wish it could have been more, and maybe one day it can be.

    Your family has captured my heart, and I think about your beautiful Lauren often. Being a mother myself I just can’t imagine going through a journey like you are, and being as strong as you have been.

    Thank you so much for sharing Lauren with everyone, she is a very special little girl. I will continue to think and pray for your family. Keep positive and strong, your doing a great job. 🙂

  2. Serena May 8, 2012 at 9:08 PM #

    Just bought 10 braclets for your little angel….will give them to my friends and family. I cannot imagine the struggle you go through each and every day. Stay strong:)

    • Emily Rose Shortell November 16, 2013 at 8:26 PM #

      Hi Guys its Emily I would love to buy some Bracelets i love you guys!

      • lifewithlol November 17, 2013 at 5:16 AM #

        We love you Emily!!!


  1. The Memory Jar « lifewithlol - February 20, 2012

    […] How to help […]

  2. It takes a village « lifewithlol - February 25, 2012

    […] How to help […]

  3. For Everything there is a Season « Leap of Faith - March 23, 2012

    […] recent weeks, I’ve been tasked with selling “lifewithlol” bracelets to raise money to help offset some of the costs associated with her disease such as a special car […]

  4. Finding Moments of Joy « lifewithlol - April 2, 2012

    […] How to help […]

  5. A belated posting of a touching moment | lifewithlol - May 29, 2013

    […] How to help – Comment aider […]

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s

%d bloggers like this: