Other Krabbe Families

Unfortunately Lauren is not alone in her journey with Krabbe Disease, using the links shared below you can read and learn about other beautiful children who have also been subjected to this terrible and fatal disease.

Krabbe Children

Reesa Michaele Stutzman – Late Infantile
Beautiful Baby Reesa, much like Lauren developed normally for the first six months of her life before showing signs of Krabbe disease. Please check out her website below
http://www.babyreesa.com/ 

Marshall and Michael Wilson – Late Infantile
The Wilsons were the first family that we met with Krabbe children, Their son Marshall like Lauren has a late infantile onset of the disease.
www.caringbridge.org/visit/marshallwilson09

Their other son Michael also has Krabbe disease but this time they knew about it in time and he was able to have a lifesaving transplant. You can read about his journey below.
www.caringbridge.org/visit/michaelwilson2010 

The Wilson’s also created a video to help spread awareness about Universal Newborn Screening and how it can save babies like ours.
The awareness video is on YouTube titled “Marshall’s UNBS awareness

Kyle Heidrich – Early Infantile
http://www.caringbridge.org/visit/kyleheidrich

Trevor Aldrian – Early Infantile
www.peaceloveandtrevor.com 

Sylvie Isgro-Schicker – Late Infantile
http://www.caringbridge.org/visit/sylvie

http://www.hopefulparents.org/display/Search?searchQuery=kirsten&moduleId=3996629&moduleFilter&categoryFilter&startAt=0

Katalina Bourque-Ranken – Juvenile
http://www.facebook.com/groups/242353789164174/ 

Ginevra Arnieri – Early Infantile
http://www.facebook.com/pages/Un-Sorriso-per-Ginevra-A-Smile-for-Ginevra/138529646238762

Krabbe Angel’s 

Noa’s Story
This spanish blog documents the life of beautiful baby girl Noa
http://eraseunaveznoa.blogspot.com/

Frankie Forgione – Early Infantile
http://www.caringbridge.org/visit/frankieforgione
Frankie’s parents made a video highlighting the devestating effects that krabbe leukodystrophy had on their son that you can check it out here http://www.youtube.com/watch?v=ODGzdaNI5v8

Jack Macpherson – Late Infantile
http://www.caringbridge.org/visit/jackmacpherson
Jack’s parents made a beautiful tribute video to their son that you can check out at this link http://www.youtube.com/watch?v=PZ-X3-KeWS8

Daisy Hamid – Early Infantile
http://www.caringbridge.org/visit/daisyhamid 

Judson Levasheff – Late Infantile
http://STORYofJUDSON.com

2 Responses to “Other Krabbe Families”

  1. Ken Roberts February 18, 2012 at 5:37 AM #

    Evie never had a story or a video or a Caringbridge site, just Krabbe’s disease & a very short life.
    Evie Beth Sugden, 21 February 2001 – 21 January 2002.
    She was my first Grandchild.

  2. tasha June 15, 2012 at 6:56 PM #

    If you don’t already know about this website you should check it out. http://www.HealingAnaya.blogspot.com
    She also has a facebook page called The Anaya Initiative.

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