Rest in peace sweet angel Lauren

14 Apr

Our beautiful Lauren left us for heaven yesterday afternoon (April 13, 2015) at 3:00pm. We were so lucky and privileged to be her parents. I am so proud of her strength and spirit. Thank you all for your wonderful prayers and thoughts. Her life was a miracle, we thought two years old would be something but she lived over four, everyday a wonderful memory 


January 8th 2011 – April 13 2015


Check out our interview with CBC Montreal News

10 Feb

Kate McKenna of CBC Montreal News swung by Lauren’s party on Sunday. She interviewed Stephen and I about the event – if you would like to check it out click on the link below! You will have to fast forward to minute 8:00 of the broadcast 🙂






Raffle Winners From Lauren’s Day Fundraiser

8 Feb



The prizes have been drawn and now we are ready to announce the winners! Thank you to everyone who participated in the raffle and congratulations to all of our winners! (Apologies if we misspelled your name!)

Winners will be contacted over the next week or so to arrange pick up/delivery of prizes!

Our Winners!

Prestige Hockey Tickets – Mia Rubino

Golf & Dinner – George Paigakuna

Converse 5-Pack – Michael Vathilakis

Voices & Visions Medium Reading – Mark Raijn & Niki Di Stefeno

Taylor Made R11 Driver – Karen Zadorozny

Brian Adams Tickets – Robin Trudell

Prenatal & Young Family Center 5 days of daycare – Dabby

Converse Bag Set – Maria Harvey & Jane Stowe

Melanie Wand Photo Package – Chris Oliver

Mondu Pet Basket – Genevieve Turcotte

Kreative Memories Gift Certificate – Tom Kearvell

Model M Bag Great Bag Co

  • Dulce Costa
  • David Carvalho
  • Dan Warin
  • Neven Ivnik
  • James Vardy
  • Amanda V
  • Donni Mellozzi
  • Lauri Rappaport
  • Angie Iadinardi
  • Andy

Palmers Gift Baskets – Ava Iadinardi & Melissa Vaney

Bistro Rouge Gift Certificate – Mia Rubino

Ocean & Earth Board Pants Set – Emilie Minssieux

Pearls for Girls Gift Box – Jennifer Banks

Artizan Gift Certificate – Nancy Cammelli

K-Cup Mega Pack – Craig Boden

Action Sport Physio Massage – Micheal

UC Baby Heart Beat Bear

  • Louise Jones
  • Theresa Solmerano
  • Karen
  • Eliott Yell

Stars on Ice – Lea Rainforth

Horizon Gift Basket – Robert Volpe

Harlem Globetrotters – Dan Wanni

Crème de la Prem Baby CPR Course – Hiten & Alice File

Crème del la Prem Baby Massage – Caroline Bertea

Batton Rouge Gift Card – Mandy

Mama Fox Gift Set – E. Gronau

Moe’s Bar & Grill – Karen Hayden

Infinity Scarf by Emily Diamond – Lisa R

Salon Augustin Cut & Blow Dry – Karen Simms

Dejeuner Cosmopolitain – D. Panneton

Buy Canadian First Tail Wags Helmet Cover – Dan Wonni

My Pretty Creativity Handmade Cards – Mat Trudeau

San Tropez Private Dance Class – Corry & Jeff Montgome

Nails by Connie Gel Manicure – Kelly Tipney

Unique by Christine 3D fiber lash mascara – Jane Stowe

Lemon Locket – Kelly Tipney

David’s Tea Gift Bag

  • Seetha
  • Michael Vathilakis
  • Sarah Hillman

Umbra Scarf Organizer from Regalo – Frances Layden

Scentsy Gift Basket – Kathy Aspell

Starbucks Mugs – Marie Dedes

CBC Montreal Interviewed us about Lauren’s Party today, tune into the 11pm news tonight Feb 8th to see the broadcast!

Today is the big day!

8 Feb

So much planning, anticipation and excitement, today is the day – Lauren’s big birthday party fundraiser!

Lauren is sleeping peacefully, while daddy and much of our family and friends have already made their way to the hall to set up.


Raffle prizes and donations have been loaded into cars and are ready to be displayed in the hall. This year we have been extra fortunate with our donations and are so excited to be able to offer so many exciting prizes!


I want to take a moment to thank everyone who has helped, donated and offered our family support and encouragement while planning this event. Today will be a great success and you are all to thank!


So if you have time today and are in the area, we hope that you will pass by our fundraiser and come say hello. Lauren, Stephen and I would be thrilled to see you!


Fundraiser this Sunday – February 8th 2015, 1-4pm

5 Feb


Happening this weekend! February 8th 2015 from 11-4pm! Check out our event page here. A Fundraiser with Proceeds going to Lauren’s Family (a child with Krabbe disease) and the MAB Mackay Foundation.

Tons of activities for the kids! Enjoy the warmth of a fun indoor carnival day. The event includes a bouncy castle, Magician, Face painter, Balloon Animals, Carnival games and so much more!

Also make sure to stop at our Vendors tables to purchase some Valentines gifts. Lemon Lockets, Gel moment, Bad Monkey popcorn and B’s Bows and Clips will be on site.

If you can’t attend the event but would still like to buy some raffle tickets you can do so by clicking here, and entering the appropriate dollar amount for the number of tickets that you would like. The only catch is that you are responsible for shipping if you are not located in or near Montreal, Qc. Unfortunatly unless you can attend, if you are pulled for an event prize (hockey tickets, concerts, etc) we will have to re-draw a new winner.

Don’t want raffle tickets but would still like to support the event? You can chose to donate any amount by clicking here instead.

Ce week-end Février 8th 2015 11-4pm! Consultez notre page de l’événement ici. Une collecte de fonds dont les profits iront à la famille de Lauren (un enfant avec la maladie de Krabbe) et la Fondation MAB Mackay.

Des tonnes d’activités pour les enfants! Profitez de la chaleur d’un jour de carnaval à l’intérieur amusant. L’événement comprend un château gonflable, Magicien, peintre de visage, Animaux de ballon, jeux de carnaval et bien plus encore!

Assurez-vous également de se arrêter à nos tables avec des fournisseurs pour acheter quelques cadeaux Saint-Valentin. Lemon lockets, Gel moment, Bad Monkey maïs soufflé et de Bs Bows et clips seront sur place.

Si vous ne pouvez pas assister à l’événement, mais souhaitez tout de même acheter des billets de tombola vous pouvez le faire en cliquant ici, et en entrant le montant approprié pour le nombre de billets que vous souhaitez. Le seul hic, ce est que vous êtes responsable de l’expédition si vous n’êtes pas situé dans ou près de Montréal, Qc. Malheureusement, sauf si vous pouvez assister, si vous êtes tiré par un prix de l’événement (billets de hockey, concerts, etc) nous devrons redessiner un nouveau gagnant.

Vous ne voulez pas des billets de tombola, mais souhaitez tout de même soutenir l’événement? Vous pouvez choisir de faire don de tout montant en cliquant ici.

Turning four!

3 Feb


So this past January 8th 2015 Lauren hit a milestone that I couldn’t have imagined when we began this journey a little over 3 years ago…she turned four!

It has been another amazing year, a gift of experiences and memories that I am so thankful for. This year we took Lauren to Disneyland in California, to see the Las Vegas lights and to witness the amazement that the Grand Canyon in Arizona has to offer.

At each stop we visited with friends who have walked similar paths, having a terminally ill child. Each of these parents are incredible, warm and loving people.

I promise to post some great pictures and updates of all the fun that we had in 2014 soon. We’ve just been so busy with life lately that finding time to post has really been a problem.

Along with the good, there was some bad – this past year Lauren’s biggest struggle with her health has been a line up of UTI’s with one following the next. Her muscle tone has weakened and with it her bladder does not empty as often as it should. This week we started Lauren on another round of antibiotics for a new infection, this is our 4th round in less than 6 months. The good news is that I’ve become much better at spotting the warning signs and caught this one early.

We are currently in Party Planning mode in our house as we are preparing for Lauren’s 4th Birthday Party, a carnival themed fundraiser benefiting our family and Lauren’s rehab centre’s foundation, The MAB Mackay foundation.

Rouge Event Design has done a wonderful job in helping us to plan another wonderful event this year. Last year’s event was amazing and we’re hoping for an even better one this year!

If you would like to attend the event, it is happening this Sunday, February 8th from 11-4 at the Dollard-des-Ormeax Banquet Hall, 12001 De Sallaberry. The event costs $5 for adult entry and includes a raffle ticket, kids entry is $10 and includes a loot bag (first 100 kids), and 4 tickets that can be used on activities at the event.

Event Banner 2015

This year we have even more amazing sponsors and fun things to do, we will have a bouncy castle, face painting, carnival games, arts and crafts, a magician, balloon animals, clowns, and more!

You can check out of Facebook event page for more information by clicking here.

We also have some of the most amazing raffle prizes, including hockey tickets, event tickets, photography certificates and a bunch more!

This list is just a sample of what we have to raffle off.


small paper size flyer


If you can’t attend the event but would still like to buy some raffle tickets you can do so by clicking here, and entering the appropriate dollar amount for the number of tickets that you would like. The only catch is that you are responsible for shipping if you are not located in or near Montreal, Qc. Unfortunatly unless you can attend, if you are pulled for an event prize (hockey tickets, concerts, etc) we will have to re-draw a new winner.

Don’t want raffle tickets but would still like to support the event? You can chose to donate any amount by clicking here instead.

Here are some picture from last years event!

If you are on Facebook, I encourage you to like our page, we’re a little bit better on posting updates there.

Happy Valentine’s Day!

14 Feb


Happy Valentine’s Day! xoxo


Today has been a pretty fun day at our house – Mommy and Lauren woke up early and got dressed up for Valentines day. Once Lauren was ready to have her picture taken, mommy set up a mock photo area right on our bed so that Lauren would be extra cozy.

The rest of the day has been pretty calm, we have been listening to music and reading some stories together. It’s really snowy outside so we are going to stay in today and snuggle.

Tonight Stephen and I will go out to enjoy some time together while probably talking all about our love Lauren ….and Buddy 😉

Wishing you and your families a wonderful day!